Fatigue. Fatigue. Fatigue. I am so freaking tired of fatigue. Almost everyone with Lupus experiences fatigue and it is one of the most common symptoms of Lupus. It can totally disrupt your life. Many different factors cause the fatigue we experience which means there’s no easy answer to treating it. It can be caused by …
Tag Archives: #chronicdisease
The things I’ve stopped feeling guilty about since Lupus
I started this blog to document and share what it’s like to be diagnosed with Lupus. I had never heard of Lupus before my diagnosis so I knew that others must be living with symptoms and not know. It is so important to raise awareness about Lupus so that more people are familiar with the …
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Why I feel guilty about my Lupus diagnosis
Over the past few months I’ve got very used to being asked how I’m feeling. How I’m feeling physically, how my symptoms are manifesting themselves, how I’m responding to treatment, how I’m feeling emotionally. So what’s the answer? Well, Lupus has made me feel a range of things. Being told I had Lymphoma was the …
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The things no one can believe I did with active Lupus
One of the hardest things to accept at the moment is that recovery is unbelievably slow. I’m trying to do more, but mostly my days involve sitting on the sofa or napping. I try to read for a bit or watch TV, but concentrating is hard. Ten minutes of stretching or going for a short …
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Steroids made me do it!
I’ve mentioned some of the fantastic steroid side effects I’ve experienced (bloating to the size of a whale etc.) but as well as physical side effects, steroids can also effect your mood and behaviour. Here are 10 of the crazy things steroids made me do! #steroidsmademedoit Go on an online spending rampage for Mint Velvet …
Life on a Cardiology Ward
When I was first admitted to Addenbrooke’s I was placed on a neurology ward. It was a huge ward of 8 beds with another ward of the same size on the opposite side of the corridor. It was so busy and noisy, day and night, but luckily I only stayed there for the first night …
How Lupus is treated
As I’m quickly learning, nothing with Lupus is ever straightforward. I’m not yet completely familiar with all the different Lupus treatment options but I can explain my treatment plan and what the next few months look like for me. Initial Treatment The first thing the doctors wanted to do when I was admitted was control …
So what is Lupus?
Lupus, or Systemic lupus erythematosus (SLE), is an incurable auto-immune disease, probably genetic in origin and mainly suffered by women. It can attack any part of the body, including vital organs, and that’s the danger. There are many signs and symptoms, and no two Lupus sufferers are the same, often making diagnosis a hard and …
My Lupus and Me…
Welcome to my new blog Livin’ La Vida Lupus! I’m Thea, 27 years old and was on the six-month trip of a lifetime with my fiancé Henry when life changed. It took two months of extensive tests, being rushed into hospital, and my organs to start failing to eventually be diagnosed with Lupus. I don’t …
Livin' La Vida Lupus 