It’s what everyone’s talking about. Whether you’re out panic-buying or whether you think it’s all mass-hysteria, there’s no doubt that Coronavirus has taken over our social media feeds and is dominating our office chat. Here’s what it’s like to be amongst it all when living with active, chronic health condition. In most cases symptoms are …
Tag Archives: #chronicillness
Lupus Gift Guide
With Christmas just around the corner here are some ideas for some great gifts you can buy or make for your loved ones living with chronic illness. A lot of these are inspired by presents I received when I came out of hospital so thank you so much for your thoughtful gifts. They’re little things …
Lupus & Loved Ones
Although I am the one that’s been diagnosed with Lupus, that lives with the symptoms on a daily basis and has to take ownership of recovery, there is no doubt that my diagnosis has had a huge impact on those around me. I often wonder what they think of Lupus; how have they dealt with …
Busy doing nothing – A guide to keeping busy on rest days
I have never heard or used the word ‘rest’ so much as I have in the last three months since my diagnosis. At first I had no choice, I simply couldn’t do anything but lie in bed or sleep on the sofa. My medical team said it would take weeks of rest to recover from …
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The things I’ve stopped feeling guilty about since Lupus
I started this blog to document and share what it’s like to be diagnosed with Lupus. I had never heard of Lupus before my diagnosis so I knew that others must be living with symptoms and not know. It is so important to raise awareness about Lupus so that more people are familiar with the …
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Why I feel guilty about my Lupus diagnosis
Over the past few months I’ve got very used to being asked how I’m feeling. How I’m feeling physically, how my symptoms are manifesting themselves, how I’m responding to treatment, how I’m feeling emotionally. So what’s the answer? Well, Lupus has made me feel a range of things. Being told I had Lymphoma was the …
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The things no one can believe I did with active Lupus
One of the hardest things to accept at the moment is that recovery is unbelievably slow. I’m trying to do more, but mostly my days involve sitting on the sofa or napping. I try to read for a bit or watch TV, but concentrating is hard. Ten minutes of stretching or going for a short …
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The Lupus Clinic
So you’ve heard me mention the Lupus clinic. My mum and I have been spending a lot of time there recently. For anyone that’s interested, here’s a snapshot of what happens there and why it’s an important part of Lupus treatment. What is clinic? The Lupus clinic is held two mornings a week at Addenbrooke’s …
Lupus & hair loss: A call to arms!
So, I’m losing my hair. That’s right, on top of everything else that’s going on in my body, my hair is falling out. Just what you want 3 months before your wedding! After a couple of weeks of denial, this is my call to arms. I’m calling all of you who have ever suffered thinning, …
Steroids made me do it!
I’ve mentioned some of the fantastic steroid side effects I’ve experienced (bloating to the size of a whale etc.) but as well as physical side effects, steroids can also effect your mood and behaviour. Here are 10 of the crazy things steroids made me do! #steroidsmademedoit Go on an online spending rampage for Mint Velvet …
Livin' La Vida Lupus 