When I was first diagnosed with Lupus one of the first things I started researching was the role diet plays in causing, treating and recovering from a flare. What I discovered was an absolute minefield of conflicting and confusing dietary advice, some of which I took on board and some of which I dismissed as …
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My top tips for coping with fatigue
Fatigue. Fatigue. Fatigue. I am so freaking tired of fatigue. Almost everyone with Lupus experiences fatigue and it is one of the most common symptoms of Lupus. It can totally disrupt your life. Many different factors cause the fatigue we experience which means there’s no easy answer to treating it. It can be caused by …
Busy doing nothing – A guide to keeping busy on rest days
I have never heard or used the word ‘rest’ so much as I have in the last three months since my diagnosis. At first I had no choice, I simply couldn’t do anything but lie in bed or sleep on the sofa. My medical team said it would take weeks of rest to recover from …
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Why I feel guilty about my Lupus diagnosis
Over the past few months I’ve got very used to being asked how I’m feeling. How I’m feeling physically, how my symptoms are manifesting themselves, how I’m responding to treatment, how I’m feeling emotionally. So what’s the answer? Well, Lupus has made me feel a range of things. Being told I had Lymphoma was the …
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Livin' La Vida Lupus 