Fatigue. Fatigue. Fatigue. I am so freaking tired of fatigue. Almost everyone with Lupus experiences fatigue and it is one of the most common symptoms of Lupus. It can totally disrupt your life. Many different factors cause the fatigue we experience which means there’s no easy answer to treating it. It can be caused by …
Tag Archives: #lupusawareness
Busy doing nothing – A guide to keeping busy on rest days
I have never heard or used the word ‘rest’ so much as I have in the last three months since my diagnosis. At first I had no choice, I simply couldn’t do anything but lie in bed or sleep on the sofa. My medical team said it would take weeks of rest to recover from …
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The things I’ve stopped feeling guilty about since Lupus
I started this blog to document and share what it’s like to be diagnosed with Lupus. I had never heard of Lupus before my diagnosis so I knew that others must be living with symptoms and not know. It is so important to raise awareness about Lupus so that more people are familiar with the …
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The things no one can believe I did with active Lupus
One of the hardest things to accept at the moment is that recovery is unbelievably slow. I’m trying to do more, but mostly my days involve sitting on the sofa or napping. I try to read for a bit or watch TV, but concentrating is hard. Ten minutes of stretching or going for a short …
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Lupus & hair loss: A call to arms!
So, I’m losing my hair. That’s right, on top of everything else that’s going on in my body, my hair is falling out. Just what you want 3 months before your wedding! After a couple of weeks of denial, this is my call to arms. I’m calling all of you who have ever suffered thinning, …
Livin' La Vida Lupus 